Enabling Socially-inclusive and Ethical Visual Research Methodologies Team


Associate Professor Deborah Warr


 

Marilys Guillemin is Professor in the Centre for Health Equity, Melbourne School of Population and Global Health at the University of Melbourne, Australia. Marilys is a sociologist of health and illness. Her research spans the sociology of health, illness and technology, innovative research methodologies, research practice, narrative ethics, and ethical practice in research and in health care. Marilys has undertaken a number of research projects and published widely in the area of visual and sensory methodologies. She is particularly interested in the ethical and methodological challenges of visual research.

Selected publications related to visual research:

Warr, D., Waycott, J., Guillemin, M., Cox, S. M. (2016) Ethical issues in visual research and the value of stories from the field, In Warr, D., Guillemin, M., Cox, S. M., & Waycott, J. (Eds) Ethics and Visual Research Methods: Theory, Methodology and Practice, (pp. 1-16) London: Palgrave MacMillan

McLeod, K., Guillemin, M., (2016) The impact of photographs on the researcher: An ethical matter for visual research, In Warr, D., Guillemin, M., Cox, S. M., & Waycott, J. (Eds) Ethics and Visual Research Methods: Theory, Methodology and Practice, (pp. 89-100) London: Palgrave MacMillan.

Cox, S. M., Guillemin, M., Waycott, J., Warr, D. (2015) Guest editorial: Visual methods and ethics: Stories from the field, Visual Methodologies, 3(2), 1-3. http://dx.doi.org/10.7331/vm.v3i2.78.

Waycott, J., Guillemin, M.,Cox, S. M., Warr, D. Howell, C. (2015) Re/formulating Ethical Issues for Visual Research Methods from the Ground Up, Visual Methodologies, 3(2), 4-15. http://dx.doi.org/10.7331/vm.v3i2.78.

McLeod, K., Guillemin, M. (2015) Adding the agentic capacities of visual materials to visual research ethics, Visual Methodologies, 3(2), 27-42. http://dx.doi.org/10.7331/vm.v3i2.78

Howell, C., Cox, S., Drew, S., Guillemin, M., Warr, D., Waycott, J. (2015) Exploring Ethical Frontiers of Visual Methods, Research Ethics 10(4) 208–213.

Guillemin, M., Archer, J. Nunn, S., De Bere, S. (2014) Revalidation: patients or process? Analysis using visual data, Health Policy. 114: 128-138

Drew, S. & Guillemin, M. (2014) From photographs to findings: Visual meaning-making and interpretive engagement in the analysis of participant-generated images. Visual Studies, 114: 128-138.

Harris, A. & Guillemin, M. (2011) Developing sensory awareness in qualitative research: a portal into the otherwise unexplored, Qualitative Health Research 22(5): 689-699.

Guillemin, M. & Drew, S. (2010) Questions of process in participant-generated visual methodologies, Visual Studies, 25 (2): 175-188.

Guillemin, M. & Westall, C (2008). Gaining insight into women’s knowing of postnatal depression using drawings. In P. Liamputtong and J. Rumbold (Eds) Knowing differently: an introduction to experiential and arts-based research methods (pp. 121-140). New York: Nova Science Publishers.

Guillemin, M. (2004). Embodying heart disease through drawings, Health: an interdisciplinary journal for the social study of health, illness and medicine, 8 (2): 223-239.

Guillemin, M. & Gillam, L. (2004). Ethics, reflexivity and ‘ethically important moments’ in research, Qualitative Inquiry, 10(2): 261-280.

Guillemin, M. (2004) Understanding illness: Using drawings as research method, Qualitative Health Research, 14(2), 272-289.

Guillemin, M. (1999). Mauve – that’s an old woman’s colour: Women’s visual representations of menopause. In S. Feldman & M. Poole (eds). Older women in Australia (pp. 56-69), Sydney: Allen & Unwin.

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Sarah Drew was a Senior Research Fellow at the Centre for Adolescent Health, Royal Children’s Hospital and the Department of Paediatrics, University of Melbourne. As a health sociologist, Sarah had a background in youth studies and a PhD in public health. Her work contributed to research and knowledge exchange at the interface of adolescent and young adult health service improvement efforts and lived experiences of chronic illness, including those relating to cancer. Sarah was interested in the use of innovative methods to enhance young peoples’ participation in research and had a leadership role in several large visual research projects. She has published and presented widely on associated ethical and methodological issues.

We want to acknowledge our colleague and friend, Dr Sarah Drew. Sarah was part of the original VRC project and brought to it her solid expertise in the field of visual research, her wealth of experience, particularly working with young people, and her gentle but strong leadership. Sadly, Sarah passed away in 2015, and was not able to see her efforts in this project come to fruition. However, her work continues to inspire us and others and we are proud to include her work here.

Drew, S. & Guillemin, M. (2014) From photographs to findings: Visual meaning-making and interpretive engagement in the analysis of participant-generated images. Visual Studies, 114: 128-138.

White, J and Drew, S (2011) Collecting data or creating meaning: troubling authenticity in ethnographic research’, Qualitative Research Journal 11: 1, 1-9.

Guillemin, M and Drew, S (2010) Questions of process in participant-generated visual methodologies, Visual Studies, 25: 2, 175 — 188.

Yates, L. Bond, L. Dixon, M. Drew, S. Ferguson, P. Hay, T. Moss, J. St Ledger, P. Walker, H. and White, J. (2010). Keeping Connected: Identity, social connection and education for young people living with chronic illness. Melbourne: Melbourne Graduate School of Education, University of Melbourne.

(http://web.education.unimelb.edu.au/keepingconnected/downloads/KC_Final%20Report_web2.pdf)

Drew, SE Duncan,RE and. Sawyer SM (2010) Visual storytelling: a beneficial but challenging method for health research with young people, Qualitative Health Research  20: 1677-16988.

Walker, H. Ferguson, P. and Drew, S. (2009) Keeping Connected: Young people’s stories of living and learning with an ongoing health condition. Melbourne: The University of Melbourne.

(http://web.education.unimelb.edu.au/keepingconnected/downloads/youngpeople_report_2009.pdf)

White, J Drew, S and Hay,T (2009) Ethnography vs case study: positioning, research and researchers, Qualitative Research Journal  9:1: 18-27.

http://www.rch.org.au/cah/research/Keeping_Connected_/

http://www.rch.org.au/cah/research/Optimising_Pathways/

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Dr Catherine Howell is Heaslip Fellow in Health Professional Education at the School of Medicine, Flinders University. Catherine’s work over the past ten years has focused on improving teaching and learning in higher education, in Australia and the UK. Her current role involves designing and implementing an evaluation framework for the graduate-entry medical degree at Flinders. Catherine’s theoretical and methodological interests include activity theory, the Experience Sampling Method, and participatory photo-based research. Catherine holds an MA from the University of Queensland and an MPhil and PhD from the University of Cambridge.

Howell, C. (2012). City of Night: Parisian Transformations. Public Culture. 17 (1): 64-78. Special issue on Art and Civic Spectacle.

Howell, C. and Arnold, M. (2008). Night shifts: some situated dimensions of student technology use. In Proceedings of the 20th Australasian Conference on Computer-Human interaction: Designing For Habitus and Habitat (Cairns, Australia, December 08 – 12, 2008). OZCHI ’08, vol. 287. ACM, New York, NY, 315-318. URL: http://dl.acm.org/citation.cfm?id=1517800

Riddle, M. & Howell, C. (2008). You are here: Students map their own ICT landscapes. In Hello! Where are you in the landscape of educational technology? Proceedings ascilite Melbourne 2008. 802-808. URL: http://www.ascilite.org.au/conferences/melbourne08/procs/riddle.pdf

Arnold, M. and Howell, C. (2008). The College Room as a Display Case. Public and situated displays to support communities (Workshop). Australasian Conference on Computer-Human Interaction: Designing for Habitus and Habitat (Cairns, Australia, December 08-12). Canberra: Computer-Human Interaction Special Interest Group. URL: http://cs-wray.lancs.ac.uk/ozchi08/papers/arnold_college_room.pdf

Howell, C. (2007). Views from Van Diemen’s Land: Space, Place, and the Colonial Settler Subject in John Glover’s Landscapes. In H. Tiffin (ed.), Five Emus to the King of Siam: Environment and Empire. Amsterdam, NY: Rodopi. 201-220.

Howell, C. (2007). Raw Deals: Kngwarreye and Contemporary Art Criticism. In L. Dale and H. Tiffin (eds), Economies of Representation, 1790-2000: Colonialism and Commerce. Burlington, VT: Ashgate. 123-134.

http://magiclanterns.wordpress.com/

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Dr Jenny Waycott is a Research Fellow in the Department of Computing & Information and Information Systems at the University of Melbourne, working on the project “Growing Older, Staying Connected: Touch-Screen Technologies for Ameliorating Older People’s Experience of Social Isolation”. Over the past decade, Dr Waycott has worked on a number of projects in the fields of human-computer interaction and educational technology. Her research is concerned with understanding the role technologies play in people’s learning, work, and social activities. In her current work, she is particularly interested in photo-sharing for building social connections. Dr Waycott has encountered a number of ethical issues in her work on designing and implementing social technologies for older people, and has recently received a grant from the university’s Office of Research Ethics and Integrity to investigate these issues further.

For further information see: http://jwaycott.weebly.com/

Selected publications:
Waycott, J., Vetere, F., Pedell, S. (2013). Designing communication technologies for socially isolated older people: Fieldwork reflections. In CHI 2013 Workshop on Designing for – and with – Vulnerable People. ACM Press.

Waycott, J., Vetere, F., Pedell, S., Kulik, L., Ozanne, E., Gruner, A., Downs, J. (2013). Older Adults as Digital Content Producers. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI 2013). (pp. 39 – 48) ACM Press.

Waycott, J., Sheard, J., Thompson, C., Clerehan, R. (2013). Making students’ work visible on the social web: A blessing or a curse? Computers & Education, 68, 86-95

Waycott, J., Dalgarno, B., Kennedy, G. & Bishop, A. (2012). Making Science Real: Photo-Sharing in Biology and Chemistry. Research in Learning Technology, 12(2)

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Deborah Warr is an ARC Future Fellow and leads the ‘Social Infrastructure and Community Capacity’ stream in the Place, Health and Liveability programme at the McCaughey Centre for Community Wellbeing. She has been at the University of Melbourne since 2001 and over this time her research has focused on settings of place-based disadvantage and communities experiencing socio-economic disadvantage. Spanning inquiry-driven, evaluation and community-driven approaches to research, her work considers the area effects of poverty and place-based disadvantage for health-related outcomes, socio-spatial polarisation and fragmentation in urban environments, associations between place and access to social capital and vulnerability to social exclusion, and the implications of neighbourhood stigma. Deborah has particular interest and expertise in participatory and collaborative methodologies and mixed methods research, and strong interest in the value of visual practices to generate research data and for research dissemination strategies that engage diverse audiences and advance social justice issues.

Key initiatives and projects that have drawn on visual practices include the Stigma Research Laboratory (2010, in collaboration with the University of Tasmania), Stories from Home (2010-11) and Our Voice, Our Community (2012-13) projects (in collaboration with the City of Banyule), and an Australian Research Council funded Linkage Project ‘Building Healthy and Sustainable Futures for Young People’ (2009-2012, in collaboration with Melbourne Citymission). Currently, Deborah is a Chief Investigator on an Interdisciplinary Seed Funding grant exploring the potential of digital technologies for fostering local social connection for people who are predominantly housebound because of mobility constraints. In 2013, Deborah was awarded an Australian Research Council Discovery grant that will explore the potential of community-based arts practice in challenging poverty and place-based stigma (2014-2016).

Warr, D. and Mann, R. (2013) Ripple Effects. Promoting Neighbourhood Safety and Social Inclusion using a Community Cultural Development Approach. McCaughey Centre, University of Melbourne.

Oliver, J., Badham, M., Warr, D., Mann, R., & MacDowall, L. (2011) Stories from HOME: An Art-Research Catalogue, Melbourne: The McCaughey Centre, University of Melbourne.

Further information can be found at http://pgh.unimelb.edu.au/about/contact/allstaff/warr and go to

http://mccaugheycentre.unimelb.edu.au/research/health_and_liveability/research_projects/sociological_perspectives_of_place  for more information on recently completed and current research projects.

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Susan Cox is an Associate Professor in the W. Maurice Young Centre for Applied Ethics and the School of Population and Public Health at the University of British Columbia in Vancouver, Canada. She is a sociologist and qualitative health researcher. Her work applies the methods of the social sciences to applied ethics research and practice. Her research focuses on: 1) the use of arts based methods in health research, 2) research ethics, especially the experiences of human subjects in health research, and 3) illness experiences throughout the life course, especially as they are shaped by as well as reflected through narrative. Susan is a member of the Advisory Council for the Arts Health Network Canada and serves as a member of the Research Ethics Board at Emily Carr University of Art & Design. Susan is particularly interested in ethical aspects of arts-based research and in developing creative approaches to teaching research ethics. She writes poetry when time permits, bakes Italian cakes whenever a suitable occasion arises and would one day like to learn sculpture.

 


Publications Related to Arts-based Research (last 5 years only)

Lafrenière, Darquise, Cox, Susan M., Belliveau, George and Lea, Graham. (2013) Arts-based knowledge dissemination methods in health research: Performing and displaying the human subject. Journal of Applied Arts and Health, 3 (3), 243-258.

Lafrenière, Darquise, & Cox, Susan M (2012). Comparing Two Methods of Knowledge Dissemination: The Café Scientifique and the Artistic Performance. Sociology Mind, 2(2), 191-199.

Lafrenière, Darquise, & Cox, Susan M (2012). “If You Can Call it a Poem”: Criteria for Assessing Research Poetry Used as a Means of Data Representation. Qualitative Research, 1-19. doi: 10.1177/14687941124 M46104

Boydell, Katherine M., Volpe, Tiziana, Cox, Susan M., Katz, Arlene, Dow, Reilly, Brunger, Fern, Parsons, Janet, Belliveau, George, Gladstone, Brenda, Zlotnik-Shaul, Randi, Cook, Sheila, Kamensek, Otto, Lafrenière Dartquise, and Wong, Lisa. (2012) Ethical challenges in arts-based health research. International Journal for the Creative Arts in Interprofessional Practice.

Carol Ann Courneya, Susan M Cox and Pamela Brett-McLean. White coat warm heart: Art-making, well-being and professional identity in medicine. Poster presented at Arts-Based Methods of Research Dissemination Symposium, Edmonton (October, 2012).

Arlene M. Katz, Reilly Dow, Katherine Boydell and Susan M Cox.  Intertwining words and images: use of reflecting process and graphic recording. Poster presentation at Arts-Based Methods of Research Dissemination Symposium, Edmonton (October, 2012).

Carol Ann Courneya, Susan M Cox and Pamela Brett-McLean. “White Coat, Warm HeArt: Art-making, Well-being and Professional Identity in Medicine. European Association for Communication in Healthcare Conference, St. Andrew’s, Scotland (September, 2012).

Cox, Susan M, Darquise Lafrenière, Pamela Brett-Maclean, Kate Collie, Nancy Cooley, Janet Dunbrack, and Gerri Frager. (2010). Tipping the iceberg? The state of arts and health in Canada. Arts & Health: An International Journal, 2:2:109–124.

Cox, Susan M, George Belliveau, Darquise Lafrenière and Graham Lea (2010). Speaking from and to the Heart: Reflections on the Process of Creating an Arts-Based Approach to Communicating Research Findings. European Association for Communication in Healthcare, Verona, Italy.

Li, Linda C., Paul Adam, Anne F Townsend, Dawn Stacey, Diane Lacaille, Susan M Cox, Jessie McGowan, Peter Tugwell, Gerri Sinclair, Kendall Ho, Catherine L Backman. (2009). Improving healthcare consumer effectiveness: An Animated, Self-serve, Web-based Research Tool (ANSWER) for people with early rheumatoid arthritis. BMC Medical Informatics and Decision Making, 9:40 http://www.biomedcentral.com/content/pdf/1472-6947-9-40.pdf (6 pages)

Cox, Susan M, Magdalena Kazubowski-Houston and Jeff Nisker. (2009). Genetics on Stage: Theatre and Public Engagement in Health Policy Development. Social Science and Medicine, 68: 1472-80.